Genome-Centric Multimodal Data Integration in Personalised Cardiovascular Medicine.

MyData Global

MyData Global is an award-winning international nonprofit and membership organisation that furthers the rights of individuals over their personal data. Its members include 100 organisations and 350 individuals representing 46 countries and every continent. MyData has commented on the EHDS regulation from the perspective of MyData operators (data intermediaries) and the MyData4Pandemics and MyData Health thematic groups.

MyData Global wants to bring a human-centric approach to data management and governance in the NextGen project. We are contributing to three main tasks:

  • To participate in the Regulatory, Ethics, and Governance Board and develop frameworks for data governance that are compatible with key reference EU initiatives, such as the EHDS and EOSC.
  • To facilitate broader engagement and exploitation with key stakeholders, establishing relationships and co-development strategies with other EU initiatives and projects.
  • To contribute to the development of communications and dissemination strategies to reach target audiences and stakeholders, including policy-makers.

MyData Global is widely recognised as a thought leader and is explicitly recognised in the European Data Strategy as a key stakeholder advocating for human-centric governance and the use of personal data. The organisation plays a key role in the EU’s Data Spaces Support Center, with a focus on facilitating the development of human-centric infrastructure for emerging data ecosystems. MyData Global’s staff and leadership regularly provide input and guidance to the European Commission and Parliament regarding personal data protection and empowerment.